Do we do too much for our children?

I was going through my old drafts ~ you know, those blog posts that were started and then never finished! I found this one, dated March 2011.....


I have a child who wasn't fully toilet trained until he was ten years of age.  He still needs assistance with dressing. He has only just begun to put on his own shoes. He doesn't know how to brush his teeth. He can't undo his seatbelt. He can't make toast or cut up an apple......... and the list goes on!!


Nick does have motor planning issues and sensory problems blah, blah, blah!   However, have I been a bit lax in encouraging independence?  Yes, absolutely!!  It is all too easy to use the excuse, "oh, he has special needs!"  Silly me - I should have been encouraging and motivating him from the very beginning. Although, to be fair on myself, young Nick was never too keen to do anything with me. He was resistant to any suggestions and extremely stubborn to boot! 


eight months later....


I am pleased to report that Nick is now extremely capable of dressing himself, although at times the t-shirt is on back to front! As for the shoes, what a breeze.... dead easy for my boy! (don't ask me about shoelaces!!). He can undo any seatbelt and we now need to teach him how to put it on! The toast making is a bit iffy, although he collects all that he needs and also puts it away when finished. I haven't really made an effort with the apple, the way Nick waves a knife around is bit off putting! :) The toileting issue ~ at times I have responded to Nick's "uh,uh" (mama) only to discover most of the toilet roll unraveled on the floor. I quickly realised that I need to teach him how to tear a few strips off the roll. We are still working on this one!


This past year has seen me be a bit more proactive with Nick! The extra time that I have put into my boy has also made me more aware of his developmental level and what areas need to be addressed. This year has also made me realise what Nick *can't* do. For a kid with a multitude of challenges he is doing great... BUT he could be doing better! Life has been too easy for him, so easy that he is quite content to sit back and wait for us all to jump to his every whim. OK, that is a bit of an exaggeration but I am sure that you get my drift! He has a learned helplessness about him! On a positive note, Nick is no longer resistant to interacting/engaging with me! He can still be a bit stubborn, but hey, he is very nearly a teenager! :)


My goal for next year, my New Year resolution so to speak, is to use any opportunity to help Nick discover, learn and succeed. There is no rush. We will take it slow. We can do it! We will do it!


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In the following clip, Nick is trying to take the lid off the toothpaste. Yes, I know.... he is 12 and doesn't know how to remove the lid! Why is this you ask? Well, ummmm, *blush*, I have been doing it for him! 



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This video clip ran for 10 minutes, however, because I don't want to bore you silly, I have edited the footage to show you the first few seconds and the last few seconds. The clip shows Nick's lack of awareness of my perspective......... but wait until you see the end of the clip!!




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Helping Dad unload the car!!


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HAPPY NEW YEAR!



Holiday assignment ~ you have got to be joking! ;)


Dear RDI Consultant

I am sorry to say that I have been a bit slack with my boy Nick over the last few weeks. It has been a crazy time coming up to our holiday season. Then, as I am about to get with the program again, my boy gets sick!  As his health slowly improves, our visitors arrive!

Life happens right? 

Anyway, we are on a go slow with the boy, but that's ok........ there will be plenty of opportunities during our school holidays to help Nick to *think for himself*. We have lots of time to actively *engage* with each other!

EeeeeeK!!!

Dear RDI consultant

What is this that you have thrown at me? An assignment for me? But we are on holiday, my brain is parked in neutral for the next three weeks!

You want me to do what?

"Describe how you have succeeded in differentiating your role as a Guide, from functioning as a playmate, entertainer or equal"

Right, hmmm, let me think..........
Let's look at playmate, entertainer or equal! 
It is so much fun to be Nick's entertainer, I can amuse him, keep him happy, get him laughing, jolly him along, make life enjoyable for him. BUT this means that I get to do all the work, he is sitting back (think Al Bundy!) and absorbing all that I am doing for him! Sure we may be *engaged*, however, our interaction is one sided, Nick does NOT play a role!
As for being a playmate.... phew, this is hard work.  My child is not into playing, therefore, once again, I am putting in all the effort, trying my best to get him to play with me. True *engagement* is quite difficult because Nick is not interested in 'playing'. Yet again, our interactions tend to be one sided, Nick is not an active participant! I am sure that you get my drift, you can hear what I am saying ~ trying my best to be an entertainer, playmate and equal requires a lot of work and it can be very exhausting for ME!

If I look at my role as being the guide in my relationship with Nick, I immediately feel calmer. Guiding is not about me working hard, it is about taking opportunities to engage with my son. It is about assisting him to be an active participant. I am forever mindful of giving him the time and space to process information. I provide the scaffolding that he needs to feel successful. I add a little challenge to make learning possible, however, I do it in such a way that Nick doesn't become stressed and unhappy about being with me.  As his guide I need to help him build positive episodic personal experience memories so that he will feel competent and prepared to return to a particular engagement. Through my guidance, Nick has learnt to trust me, he wants to be with me. He knows that I am not going to overwhelm him and push him too far beyond his level of competence. 

Yes, I use activities to help with our interaction, however, the activities are only the *prop* to true engagement. I know that my guiding relationship with Nick is all about *engagement*. I am also very aware of his developmental level and realise that there are stages that he has missed out on. Those stages are the very foundation of his development and these need to be addressed. As his guide, as his parent I am aware that what I do with Nick is not hard work, there is no pressure on me to perform........ it's parenting!


Describe how you have identified the productive and unproductive roles you take with the Student

Well, this question is relatively easy to answer! Although, if you had given it to me a year ago I would have battled to get my head around it!!

Unproductive roles: These are unsatisfactory interactions where engagement with Nick is minimal. Nick is passive and unresponsive. He shows signs of anxiety and uses avoidance tactics. I have discovered that If Nick *feels* he is required to perform, he will immediately freeze and then repeatedly make the sign for "finished". I end up being the one who is doing all the work and making the effort to keep our interaction going. There is no flow between us, no reciprocal engagement or any interest. To give you an example; I mention to Nick that I need to stack the dishwasher and I invite him to help me (very important ~ this household chore is being used as a *prop* to help/encourage engagement! My focus is not on the chore itself!). Our first few seconds can be very interactive and it may be possible for me to add a little challenge, however, if I push him too far and keep the interaction going for too long, then we both lose the plot. Our interaction has turned into a task and we have become unproductive!  I need to take great care not to overwhelm my boy. It is a fine line to walk, too much pressure and Nick can't cope!

Productive roles: These are very easy to identify. I feel calm, competent and very engaged with my child. Nick is focused on me and what we are doing, we have lovely joint attention and Nick plays his role with confidence. Our interaction is not hard work, it feels relaxed and natural. Our supermarket visits are a good example of this. Gone are the days when just driving into the car park used to stress out my boy! Now he hops out of the car and waits to see what I am going to do next. He checks out to see if I need a trolley and will happily race off to collect one. We are in sync with each other as we trawl the isles. Nick is comfortable with constantly changing roles and I feel at ease throwing him little variations. He doesn't perceive our *outing* as a task and I am mindful about our roles.  All in all, our trips are generally successful. :)


Dear RDI consultant


I realise that I still have some work to do before I have completed my assignment, however, I am sure you will agree that the following can wait for a bit longer!! 


Share your plan and progress to eliminate unproductive roles and habits.


Describe your progress in maintaining an optimal emotional state for both yourself and the Student, during Guiding Engagement.


To be honest, I wouldn't have a clue where to start....... J

One more thing before I sign off. Thank you for your continued guidance, you have helped me tremendously. I have learnt so much this past year and Nick has made such lovely progress. For a non verbal kid with classic autism, he is doing great!


Have a wonderful Christmas and a Happy New Year with your family and friends. 


Di x


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