Showing posts with label spotlight. Show all posts
Showing posts with label spotlight. Show all posts

RDI ~ framework orange!

My hub's loves his daily glass of freshly squeezed orange juice. Nick also used to drink it, although for some strange reason, now refuses to have even a tiny sip! Bit of a shame really, considering that Nick has had a bad head cold this week and he would have benefited from the extra vitamin C. Anyhow, such is life!

We have been a bit slack this week. Let's face it, who wants to put in the extra effort of *doing stuff* when feeling awful! It is now the weekend and we are nearly ready to get back on track with our latest RDI assignment. For the next couple of days I just want to spend time easing Nick back into some nice co-regulatory activities and throw him a little curve ball here and there for that extra challenge.


Reminder: Two years ago he would refuse to interact with me in any way at all, unless it was to do something that he wanted me to do!


Back to the oranges!


I have had a small bag of oranges sitting on the kitchen counter for the last few days. Bit of an experiment really..... as in, who would put them away!! In the end I could take it no more and decided to take advantage of the opportunity and write up a framework plan using the oranges as an activity for a planned engagement.


As in all interactions with Nick, I ensure that we both have a role to play. There are a variety of role actions to choose from and I decided on a contingency pattern ~ this is where I take a turn and then Nick takes a different turn. Therefore, for this particular framework, I would take an orange out of the bag and then hand it to Nick. He would then put the orange into the fridge.


My goal was to add some variations to this established co-regulatory pattern. Firstly, I would pass him a few oranges, one by one. Then I would throw him a few oranges, one by one (throw the oranges towards him and then add variations by throwing up, right and left). I also planned to give him the empty bag and observe to see what he would do with it. The challenge for Nick was to adjust to the changes in variation. 


Reminder: Two years ago, it was extremely difficult for Nick to participate in any set up activity that also involved me. He would get very stressed if he felt that any demand was being placed on him. (Note: when we first started with planned engagements, each activity lasted for only a few seconds). Nowadays, time is not such a big issue, although I am very aware of how far I can challenge him, taking into account the *edge plus one* concept.


Another important factor to consider is making sure that there are no distractions. This means turning off all electronics and/or removing interests that do not involve other people. In this case, it means turning off the stereo, sending the dogs outside and asking Thomas to give us some space.


When writing up the framework, I also put thought into establishing some activity limits. When would I end the engagement? If Nick became stressed, what would I do? Should he indicate that he had had enough, how would I react? Would I just push him that one little extra step so that the activity was finished on my terms, not his? In this case I felt confident that Nick would cope with the activity, even with the extra challenges. Therefore, I decided to end the activity after the bag had been disposed of. I also decided that should Nick show signs of going beyond his level of competence, I would smile my way through any protesting and move on for a couple more *seconds* and then end the activity.


In all of my interactions with Nick, I am mindful about my communication methods and giving him the opportunity to think for himself. When writing up a framework I always establish what style of language I want to use. Do I want it to be a non verbal activity where Nick will need to read my facial expression and body language for information? What declarative phrases can I use to suggest to Nick what may happen/what can be done? What can I say to spotlight a successful moment? With any style of communication that I use, the emphasis is on guiding Nick to hear and/or see what is happening, process the information and then make his own decisions.

One of the most important points that I need to remember, is that the activity is only a prop. My ultimate goal is engagement with my son. The framework is all about what I need to do in order to guide Nick. If it doesn't work out as planned, then I will reflect on what we have done, learn from the experience and then write up a new plan. If all goes well, then I will think about our next step. It's a great habit to get into: Take Nick to his edge of competence and then one more step. And then again... always moving forward.


In order to remain focused it is helpful to choose a mantra for each framework. My mantra for this particular framework is;  Remember to pause, remember to pause.....




Joyful January


I am starting out the new year in celebration of my son Nick.

What is there to rejoice about you may ask! Am I glad that I have a child with an intellectual disability? Am I delighted that he has autism/is autistic? Am I thrilled that I don't have the *freedom* of life like that of my friends? Of course I am heart sore that Nick will not get to experience life like his big brother. There is no doubt that I am concerned about his future and what is going to happen to him when I pop my clogs (so to speak!). Yes, I am terribly sad that we are a dysfunctional family and that there are times when Nick is excluded from family activities......

Over the years I have had a few choices;
1. Become an absolute misery and let my situation rule the rest of my life.
2. Become obsessed with autism to the detriment of my family.
3. Bore everyone to tears about the woes of having a child with special needs.
4. Pick myself up off the floor and keep moving.
5. Take on board my son's disability and all that it entails.
6. Become informed and also inform.
7. Accept my son for who he is and embrace his individuality.
8. Provide the right input to insure that he continues to progress.
9. Pull this child of mine into my arms and love him, no matter what.......

I choose to celebrate my son.


I celebrate the amusing stuff.
Nick has become very tactile and he has this need to touch my face and my arms. This is all very well, until he starts pulling on my jowls or flapping the underside of an arm!! On many a shopping trip, Nick will come to me and then pull in Thomas and Allan for a family hug. No doubt we have had some strange looks, although I prefer to remember the smiles! I enjoy how he is the typical boy when it comes to Bottom Burps (love Purple Ronnie!). He takes great delight in highlighting what he is about to do ~ how can you not smile at that!! It gives me joy to watch him initiate a chasing or throwing game with his brother. I love how Nick starts making his *humming* noise and then waits to see who will reciprocate! :-) 

I celebrate his little patterns.
Nick certainly shows signs of OCD! In fact, a few years ago, his need for repetitive patterns really hampered his progress with learning and living. This obsessive need has decreased, or perhaps, I have become accustomed to these odd quirky little patterns that are part of Nick. We have had the *drop to one knee* routine, the *go back and check the door* routine (oh, hang on, I also do that!!!!). This week it is the *close the loo door, run the fingers over the light switch a few times* routine. Last week, it was *have a sip of juice and then hold the container to the ear* routine. My word, we have had some funny ones! :-)


I celebrate his progress.
Nick continues to surprise me in all aspects of his development. A year ago, he was a stubborn mule, refusing to get off the couch and quite adamant that he was NOT going to engage with me! Today, he will sit on that same couch, look at me with a cheeky smile on his face, and then leap to his feet to come and join me! We have a lot of big words in our vocabulary; relationship, resilience, competence, flexibility, objectives, evaluation, personal experience memories, spotlight, reference, mastered, communication (and non verbal), perspectives, engagement, regulate, pacing........ and the list goes on... He is doing great, WE are doing great! :-)


I celebrate his nature.
Nick is a gentle soul. He is not an aggressive child. Sure, on occasion there will be a little bit of self injurious behaviour, however, this is generally under extreme stress or anger! I haven't seen much of this over the past year. He can be cross and shake his head for no. He can stamp his foot. He will wave goodbye when he doesn't want anyone around. He will sign "finished" if he has had enough. If we are doing something that he isn't keen on (long walks!) and he becomes *flat* and unresponsive, I start singing to him! His favourite jingle at the moment is Bananas in Pajamas and I only know three lines! This perks him up and gets him smiling! Nick is an uncomplicated chap and has ambitions of being a couch potato. Sadly for Nick, my ambitions for him are a little higher! :-)

Speaking of which, I need to stop procrastinating and get back on track with our latest objective...... It is all about Perspective! 

I celebrate Nick and I know that 2012 is going to be a very good year for us

~*~