Setting Limits






Nick is very keen on milkshakes, however, he does tend to gulp them down too quickly. In fact, he is like this with any type of liquid. I have tried on numerous occasions to slow him down. I have modeled, guided and directed.... to no avail.

Nick also has extremely low muscle tone and this is very evident around his mouth. His bottom lip droops and his lips are always apart. Over the last few months he has been pushing out his bottom jaw and placing his lower teeth over his top teeth. We have spent years of therapy trying to help with his tone, yet it is getting worse.

Well, I had a bit of a *aha* moment today when we went out for lunch. After munching away on a huge plate of Spag Bol, Nick requested a milkshake. It was thick and creamy and needed a good old stir to make it easier to gulp down. As is standard practice, Nick indicated that I should stir the milkshake. Well you know, I was just plain fed up with doing the whole stir stir thing. A fleeting thought made its way through my brain... 'what would I do if this was Nick's big brother?'

I looked at Nick and said, "Nick, you are a big guy now and I am no longer going to stir your milkshake. Also, from now on you are going to have to use a straw!"

Well, can you believe it? He used the straw. It took him an age to get through the milkshake, yet he tried his very best. As for that lip closure ~ WOW. I wonder what Nick's tone is going to be like in six months if he keeps using a straw. Then again, I wonder what his waistline will look like if we make this a regular therapy!

Notes to self:

Presume competence
Take a risk
Don't stress if he makes a fuss
Give reassurance and encouragement
Don't be a helicopter parent
Set limits
Remember 'edge plus 1'










Happy New Year!



Hello there

Firstly, thanks for stopping by. I really appreciate that you have taken the time look at my blog. If you have been following for a while, you will know that I write about my lovely Nick. He is on the more severe end of the Autism Spectrum. I find it cathartic to write about our experiences ~ blogging is cheap therapy and all that! 

We have been on this a journey for over sixteen years, and in all honesty, it has been quite a bumpy road. Such is life, hey? Anyhow, we have all lived to tell the tale and life is now cruising along quite nicely (80% of the time!).

For the last few weeks I have been having an internal debate on the merits of continuing with this blog. Is it right to continue sharing our story now that Nick is 6 feet tall, hairy and has a gruff voice? Is anyone actually interested in reading about autistic teenagers? Do people feel comfortable reading about an intellectually disabled young man who will never live independently? The list goes on....

The last couple of years have also brought about a change in myself. I am no longer focused 100% on autism and because of that I have some extra free time. That time is being put to good use and I have also taken up photography as a hobby. Having something that is exclusively for me has been a game changer. I find photography extremely challenging, however, it is really exciting to be experimenting with something new. 

Anyhow, I have decided to keep on waffling for an indefinite period, although you may find there are less *autism* posts and more pretty pictures! For the sake of privacy, I will not be sharing any more video footage of Nick. Should you be interested in watching clips of RDI in action, check out Zoe's blog where she engages with an adorable little girl called Lucy. 

Bye for now. x