Life!

It's been a mad, bad, sad day!


I woke up far too early and couldn't go back to sleep. I dragged both boys out of bed and even tried singing Happy Birthday to Nick....... no response!!  Oh what a surprise!!


For the first time ever Nick decided he wasn't going to eat breakfast.  He sat at the table like a slab of granite.  So.... no breakfast for him today!


Then it started pouring with rain!  I raced off to the school bus stop with one boy and I couldn't help myself here (must have been the breakfast thing!!!)... I wept and wailed all the way to the bus stop, with the teenager sitting in the passenger seat looking absolutely flummoxed. To give him his due, he did give me a hug when he got out of the car!


I then rushed home to collect the other one, to get him to his O.T session by 7.30am (takes half an hour to get to O.T!)


Once O.T was all over and Nick was back at school....... I headed off to buy bread and milk and then to meet a friend for coffee at 10am! Well, would you bloody well believe it, as soon as I left the supermarket carpark - the car started playing up and an ominous light started flashing on my dashboard. Thankfully the mechanic we use was just across the road and thankfully Allan is away! :)  One of the lads dropped me at home to collect Allan's car and I still made it for my 10am coffee!


Oh yeah, so much for retail therapy - the money went to the man who came in this morning to inject all the holes in my kitchen floor.  We are riddled with bora, well not any more!  But I am R1800 short, could kick myself for not getting another quote!


So anyway, I collect Nick from school and what does he do when he gets home - takes off his shoes and stands in a little puddle of poison that hasn't been wiped away!


Oh, nearly forgot!  Gladys (who comes to my house on a part time basis to do some cleaning and ironing - yes I am very lucky!) comes to work late.  To be honest, this doesn't bother me as she is a really nice woman and we have an easy going relationship. Well, my bottom lip dropped to the floor when she told me why she was late, she was also quite astounded that I hadn't heard the news!  Her daughter's school was possessed by demons yesterday.  The demons did not affect the boys, only the girls. There was a lot of weeping, wailing and gnashing of teeth going on!  Therefore, they were all sent home yesterday and couldn't go back this morning until all the demons had been chased away. If I had of known, I would have gone to the school yesterday and joined in - that way, I would have been absolutely fine today! Yes, I know that I am being cynical!  Sometimes this cultural thing has me shaking my head!


I took one look at Nick this afternoon, (after he had eaten some lunch!) and thought to myself, I really can't deal with you today.......... so I let him stim all afternoon on the computer and then the car CD player.  Happy Birthday Nick!  Needless to say he was extremely happy for the rest of the day!


At 4pm, we went to collect Thomas from Hockey. What should happen when we get to the new hockey astro....... we come across a security guard and a boom.  And guess what he tells me.... can you guess?  All I want to do is drive into the carpark, collect my son and his mate and then leave the carpark.  But no, I don't have a sticker on my car, therefore I must park my car on the verge outside on the road.  So, I tell him that I can't leave my child with special needs in car alone and I can't take him with me!!!  We exchanged quite a few words and I won!  Am phoning the school tomorrow!


But you know what, all this is nebulous stuff, typical day to day stuff, bits an pieces of life that aren't that interesting.  There is a lot more important stuff out there, a lot more important people out there, special people. We only have one chance at life so we have to grab it, enjoy it, love it! So no more whining from me - 26th May is a new day and I am ready to get on with it.  
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My thoughts are with a very special friend
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A sense of community!


Where to start!!

Today I attended a parent support group that was organised by Action in Autism. The meetings are held every month and anyone with an interest in autism can attend - parents, children with asd, siblings, adults with asd, educators, friends, Grannies and Grandpa's.

Sometimes I go, sometimes I don't! 

What an eclectic bunch we are. Autism has no racial boundaries, there is no cultural divide.  We come together from all walks of life - there are new parents, veteran parents, some of our children have many challenges, some of our children are at university, some of us are married, some of us are single parents, some of us are educators........... this list could go on and on.....  BUT we all have a connection with autism!

Well, I had a particular reason for going to the meeting today.  The guest speaker was a Dad of two young men with autism - I know this Dad and he knows me BUT we have never really spoken except to say "hello".  I have known of his family for years and years and I have watched his boys grow.  The Dad is also a teacher and in fact he teaches Thomas Afrikaans....... oh and he is also a rugby fanatic..... and he is a big man, I am thinking Jonah Lomu big! (you can tell that I don't really keep up-to-date with rugby because Jonah is so last season - very shocking that I don't know the team players.... except for Dan Carter and that is only because he is cute!!)  I seriously wouldn't like to meet this Dad on a rugby field and I am so desperate to tell you his name but I can't - can I?  Ok, best I not - just in case!!  

....... onwards!

This Dad was fabulous, he spoke about his journey from the beginning to where he is now and he had us all sitting on the edge of our seats listening to every word. He spoke about the people he has come across.  Shaelene, I know you are now miles away but did you feel your ears burning - their first ever angel! :) He spoke about his boys and the dreams he had of standing on the side of the rugby field yelling encouragement to them, he spoke about his wife... and told her that he loved her, he spoke about how important it was to have an outside interest (can you guess what his was... haha) he spoke about how it has taken many years to reach acceptance. He spoke about his deep love for his children. Ahhh, it was just wonderful, straight from the heart, gut wrenching stuff.  He told us that this was the first time he had spoken in public about autism and his family..... it has taken him 20 years to get to where he is today!

Crikey, have just seen the time - the rugby started half an hour ago and I am the only person in Durban NOT watching it.  Please excuse spelling mistakes - no time to proof read!

Thank you Mr Dad, your talk was just perfect. 

Thank you Action in Autism - the sense of community this afternoon was huge! :)


GO SHARKS!





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